Purple is Vitiligo Awareness Color, as we mark the third World Vitiligo Day globally, we crave for your support.
We have experienced first hand stigmatization, segregation, rejection, severe emotional and psychological impacts of Vitiligo. Imagine having a condition with no known cure... which has not been well researched, trying every remedy there is to get better. Worse, imagine the looks people give you...or how they treat you because they haven't been sensitized about Vitiligo...If everyone knew about Vitiligo it would have a whole impact in the Quality of Life (QoL) of the patients.
Vitiligo is a multifactorial skin depigmenting disorder with an etiology (the cause and progress of the disorder) not well understood. Most devastating for the patient with Vitiligo are the social, psychological, emotional and sexual ramifications of these disfiguring disorders. More on www.vitsaf.org
The current therapy for Vitiligo focuses on halting the Progression of the depigmentation with topical immunomodulators and encouraging repigmentation with phototherapy. However, success rates of these therapies is dramatically low, variable, and not permanent. Therefore, new therapeutic approaches are warranted. With many Vitiligo patients responding poorly to the current therapies, more focus should be directed to improve non-medical consequences of Vitiligo more importantly Extensive awareness, enlightenment and education and -
Availability and access to Vitiligo information for all,
General support and care, to name a few.
Our hope is that by having a special Vitiligo day will raise and create extensive Vitiligo education, awareness and enlightenment in the public and medical community thereby improving Quality of Life (QoL) of persons living with Vitiligo and the disfigured.