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  Trisomy 18 Awareness

  Trisomy 18 is a genetic disorder in which a person has a third copy of genetic material from chromosome 18, instead of the usual two copies .Trisomy 18 is a relatively common syndrome. It is three times more common in girls than boys. The syndrome is caused by the presence of extra material from chromosome 18. The extra material interferes with normal development. This badge is in memory of my niece Hayliee Hope Marie Jones~we love and miss you but know that one day we will see you again~for you have wings~watch over us and help us to help others. God Bless families who are affected by this and other genetic disorders, pray that science is able to find a way to prevent these families from having the heartache of losing a beautiful child. With all my love

  46 supporters
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  Trisomy Awareness

  Trisomy 18 is a genetic disorder in which a person has a third copy of material from chromosome 18, instead of the usual two copies. Likewise, Trisomy 13 is a similar disorder in which a person has a third copy of the 13th chromosome.

  158 supporters
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  Molly Bear Foundation, Inc.

  The Molly Bear Foundation is a 501(c)3 non-profit, named in loving memory of Molly Elizabeth Brown, that provides supplemental financial assistance to families raising children with Trisomy 18.

  22 supporters
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  Trisomy18, Edwards Syndrome

  Like down syndrome trisomy 18 (Edwards Syndrome) affects all organs and systems of body. Trisomy 18 adversely affects all system organs of human body. Its symptoms include – 1. On nervous system and brain- Edwards Syndrome severely affects central nervous system and brain. Mental retardation and delayed brain developments are the common found brain malfunctions. High muscle tone, physical malformation, seizures can also be found. 2. Head and face- It is characterized by distinct facial abnormalities. Microganthia, (abnormally small jaws), Microcephaly (small head), low set ears, epicanthal folds, wide set eyes, small eyes, small mouth, upturned nose, prominent back portion of head, and palpebral fissures (narrow eyelid folds ) are some of the common found symptoms. 3. Heart- 90% of the victims suffer from congenital heart defects. Ventricular septal defect, Atricular septal defect, coronary valve defect, patent ductus arteriosus are known symptoms found. 4. Bones- Clenched fists with its 2nd and 5th fingers overlapped on others, severe growth retardation, rocker bottom feet, webbing, absent radius, shorten nails are some of the symptoms visible. 5. Besides this, malfunctioning and malformations of digestive tract, reproductive systems, and urinary tract are found. Prognosis As more than half of the affected infants do not survive beyond 5 to 6 days so these abnormalities are not compatible with more than 2 to 3 months. Very rare cases have survived to teen age but suffered severely with handicaps and finally succumb. Treatment Due to its nature, life sustaining measures are not recommended. The medical treatment for individuals suffering from trisomy 18 is always supportive which is focused on treating infections, heart problems and providing nutrition. Due to its complex, multifaceted nature only 5% chance of survival up to 1 year of age is present.

  9 supporters
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  Trisomy 18 Awareness- The Arms of and Angel

  We are a non-profit organization dedicated to the needs of families affected by the genetic disorder Trisomy 18. It is our mission to provide emotional and financial support to these special families. We will provide information to the community based upon mutual respect, comfort, and understanding, in an attempt to ease the suffering of those experiencing this painful journey. We will work diligently to answer questions that may arise for families of children with Trisomy 18, and provide up-to-date and pertinent information regarding this disorder. We will also encourage and aid in the funding of research needed to prevent or reduce the occurrence of Trisomy 18.

  5 supporters
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  Trisomy 18 Awareness

  Trisomy 18 Awareness, Edward's Syndrome

  3 supporters